Wednesday, 15 July 2009

Diagnosis and Treatment

DIAGNOSIS:
8 June 1999,I reached the hospital and from there my journey towards a better health life began.I entered the Doctors room.He examined me and asked me how and when it all started.I told him the whole story the pains,the swellings.........After examining for 45 min he took me to his senior Dr. whose name was Dr. UK Mishra and explained my case and when the Dr. asked what does he thinks of this case he said i think it's a case of Polymyositis.I heard a name which i never heard earlier to b very true it took me a while to remember it's spelling.
Anyway my dad was been told that they've to admit me.......
EXAMINATION:
On examination they found Periobital and facial puffiness,Heliotrope skin rash above eyelids,bulbar weakness,sternooestand and trapezias weakness.....all this meant that I've PM with Dermatomysotisis.Muscular as well as skin infection.
OBSERVATION:
From that day to another 15 days i was on some kind of observation.On my very first day in the hospital i was given injection Solumediol 0.5gm x 5 days.Within 5 days my swelling disappeared and and what was visible now was a skeleton of me.Everyday some tests and for a time being i thought is their any test left which has not been done?Well they confirmed that it's a case of Polymyositis after doing my Biopsy.We were so happy at last i was diagnosed and my treatment can start and i can live normally...... i was so happy even in that horrible stage 'coz i knew I'm going to get up now.I can walk,run and dance.I started visualising myself doing all these things.........OH God! how excited i was.
EXPERIENCES:
Life in a hospital teaches you so much.........Every other bed next to you belongs to someone suffering with some disease.Everybody seems to be in so much pain.The hospital bed make you think that it's not only you who's suffering or is in pain .The world is full of Peoples who are suffering.There are cases worst then you.Some of them are so bad that it hurts to watch them and then at that time you feel so thankful to God that at least your case is not that worst theirs still hope in it.Only thing you pray to God at that time is that He gives you the strength, so that you can fight this time and come out of it as a winner.I realized how lucky I'm to live.Doesn't matter even if it's painful and miserable at least their is a chance of getting better and to live normally.There were peoples all around the country and all different kind of problems...some were small kids,some were Fathers and some were Mothers.....there were some who couldn't even talk.Their family needed them.The pain they were going through was visible on their faces.And when somebody fall sick it's not the person who gets affected but the whole family and the peoples attached to them get affected.I realized that there and It was really sad to watch all of them.......
MEDICATION:
After 15 days i was discharged from the hospital with some medicines and instructions......
i was advised to take 60 mg of predisolone and 500 mg of calcium+some vitaminsbut 'coz my weight was just 40 kg they settled me on 40 mg of predisolone and told me that I have to keep visiting the hospitals every 3 months and have to be on medicines through out my life.....I was happy in one way that at least I'm been diagnosed and will be alright very soon but the thing to be on medicine on whole life was too much to digest.... the doctors told me that with in 6 months I'll gain back some of my strength and will be able to walk and live a normal life.........
23 June i reached back to my home......i wasn't able to get up still but at least there wasn't any swelling and the pain was also bearable.Everyone was so happy...all my friends and neighbours came to visit me.......it all looked like as I'm born again.To be honest it was like that only as I was like a child totally dependent on my parents for gettingup,eating,bathing,changing,walking,sitting....every little thing........and i knew in my heart that again like a child i've to learn everything.

5 comments:

  1. Thanks dear....for your time and nice comment.

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  2. anu i know how meaningful and painful each line u have writtern is, i pray god that he should bless all of us with the same courage and possitive thinking as u had when u faced it and bless no one with such pain dear

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  3. You are a strong and inspiring person. i too have Polymyositis, good luck and i will keep in touch, Jerry

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  4. thx Jerry...I know I took ages to thank u...it's just I nvr followed my own blog :)
    I hope you r coping well with PM. it's frustrating as we all look so normal and others can't understand why we complain of so much of body pain....All I can say is frustration is not going to help, we need to accept this fact that we r not that normal as we used to b....can't do all that physically which we took for so granted...but never mind take it as an experience and it will help you in becoming a more stronger and better person.
    Tc...will be in touch

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