My early days of Polymyositis

1 – 1 of 1 It's been 10 years I'm a patient of Polymyositis and today i just felt like writing something about it.It not as i never felt like telling or writing it before.....but it's just never happened.10 years ago When i was 21 i never thought my life is going to be affected so much with just falling sick.I was always a very active girl,always interested in doing outdoor activities,had such a good flexibility and was so proud of it.And then in Feb 1999 I was preparing for my B.Com final year exams and i realized I'm getting tired so easily,climbing the stairs,running was becoming difficult for me.I didn't take it that seriously as we all do feel tired and exhausted,(specially during our exam times).But i didn't get better....as the days started passing by and my exams too i realized something is really wrong with my body but i was too late to realize that......i still remember the date it was 5 April my cousin's birthday and i was having some gap between my last two exams.I reached her house all by walking it's about 2 miles......every step was so difficult.I reached her house and just asked for the bed.....i lay ed thinking will get up in 10 min....but that 10 min took so long to come.That was the day i got stuck with the bed and was with till another 6 months.......nobody knew what happened to me........I was in so much pain as like some 100 kilos of stuff has been put on my each part of body.In spite of trying my best i couldn't move myself...the pain was unbearable.I had no idea what was happening to me ...i was so tensed for my last 2 exams.Anyway we went to the Doctors...and in spite of me telling them that I'm getting swelling in my arms nobody noticed(i used to be very skinny 39 kg....)a cm or 2 of swelling was not visible to anyone.......we kept changing the Doctors...but of no use.My situation got worst and worst.The day i had to write my exam my friend lifted my feet so that i can step inside the car...somehow i reached and tried to write something....but i couldn't...i just cried and cried.....wrote a line or two and just came back telling my situation to the headteacher......
My situation was becoming worse and worse.It became completely impossible for me to lift my arms or legs.I was totally paralysed.Clenching fingers was also so difficult.I had to call someone if i wanted to get up.I was in unbearable pain...even if somebody used to touch me to feel my swelling it used to hurt.I was so shocked by seeing myself in that situation.Lying down whole day and feeling sick ,how difficult is that was realized by me then only.
We kept changing Doctors as none seems to diagnose my condition making us more miserable.One day we(me and my Dad) went to our GP.That was the day when my GP told my dad that if he wants to see me alive,he should take me to PGI-Lucknow(INDIA)immediately.Without wasting time my dad took me to PGI with a hope in his eyes........WE reached the Hospital next day early morning and my journey towards a better health life began from there...........draft 11/07/09 by Anita Delete