Diagnosis and Treatment

DIAGNOSIS:
8 June 1999,I reached the hospital and from there my journey towards a better health life began.I entered the Doctors room.He examined me and asked me how and when it all started.I told him the whole story the pains,the swellings.........After examining for 45 min he took me to his senior Dr. whose name was Dr. UK Mishra and explained my case and when the Dr. asked what does he thinks of this case he said i think it's a case of Polymyositis.I heard a name which i never heard earlier to b very true it took me a while to remember it's spelling.
Anyway my dad was been told that they've to admit me.......
EXAMINATION:
On examination they found Periobital and facial puffiness,Heliotrope skin rash above eyelids,bulbar weakness,sternooestand and trapezias weakness.....all this meant that I've PM with Dermatomysotisis.Muscular as well as skin infection.
OBSERVATION:
From that day to another 15 days i was on some kind of observation.On my very first day in the hospital i was given injection Solumediol 0.5gm x 5 days.Within 5 days my swelling disappeared and and what was visible now was a skeleton of me.Everyday some tests and for a time being i thought is their any test left which has not been done?Well they confirmed that it's a case of Polymyositis after doing my Biopsy.We were so happy at last i was diagnosed and my treatment can start and i can live normally...... i was so happy even in that horrible stage 'coz i knew I'm going to get up now.I can walk,run and dance.I started visualising myself doing all these things.........OH God! how excited i was.
EXPERIENCES:
Life in a hospital teaches you so much.........Every other bed next to you belongs to someone suffering with some disease.Everybody seems to be in so much pain.The hospital bed make you think that it's not only you who's suffering or is in pain .The world is full of Peoples who are suffering.There are cases worst then you.Some of them are so bad that it hurts to watch them and then at that time you feel so thankful to God that at least your case is not that worst theirs still hope in it.Only thing you pray to God at that time is that He gives you the strength, so that you can fight this time and come out of it as a winner.I realized how lucky I'm to live.Doesn't matter even if it's painful and miserable at least their is a chance of getting better and to live normally.There were peoples all around the country and all different kind of problems...some were small kids,some were Fathers and some were Mothers.....there were some who couldn't even talk.Their family needed them.The pain they were going through was visible on their faces.And when somebody fall sick it's not the person who gets affected but the whole family and the peoples attached to them get affected.I realized that there and It was really sad to watch all of them.......
MEDICATION:
After 15 days i was discharged from the hospital with some medicines and instructions......
i was advised to take 60 mg of predisolone and 500 mg of calcium+some vitaminsbut 'coz my weight was just 40 kg they settled me on 40 mg of predisolone and told me that I have to keep visiting the hospitals every 3 months and have to be on medicines through out my life.....I was happy in one way that at least I'm been diagnosed and will be alright very soon but the thing to be on medicine on whole life was too much to digest.... the doctors told me that with in 6 months I'll gain back some of my strength and will be able to walk and live a normal life.........

23 June i reached back to my home......i wasn't able to get up still but at least there wasn't any swelling and the pain was also bearable.Everyone was so happy...all my friends and neighbours came to visit me.......it all looked like as I'm born again.To be honest it was like that only as I was like a child totally dependent on my parents for gettingup,eating,bathing,changing,walking,sitting....every little thing........and i knew in my heart that again like a child i've to learn everything.

My early days of Polymyositis

1 – 1 of 1 It's been 10 years I'm a patient of Polymyositis and today i just felt like writing something about it.It not as i never felt like telling or writing it before.....but it's just never happened.10 years ago When i was 21 i never thought my life is going to be affected so much with just falling sick.I was always a very active girl,always interested in doing outdoor activities,had such a good flexibility and was so proud of it.And then in Feb 1999 I was preparing for my B.Com final year exams and i realized I'm getting tired so easily,climbing the stairs,running was becoming difficult for me.I didn't take it that seriously as we all do feel tired and exhausted,(specially during our exam times).But i didn't get better....as the days started passing by and my exams too i realized something is really wrong with my body but i was too late to realize that......i still remember the date it was 5 April my cousin's birthday and i was having some gap between my last two exams.I reached her house all by walking it's about 2 miles......every step was so difficult.I reached her house and just asked for the bed.....i lay ed thinking will get up in 10 min....but that 10 min took so long to come.That was the day i got stuck with the bed and was with till another 6 months.......nobody knew what happened to me........I was in so much pain as like some 100 kilos of stuff has been put on my each part of body.In spite of trying my best i couldn't move myself...the pain was unbearable.I had no idea what was happening to me ...i was so tensed for my last 2 exams.Anyway we went to the Doctors...and in spite of me telling them that I'm getting swelling in my arms nobody noticed(i used to be very skinny 39 kg....)a cm or 2 of swelling was not visible to anyone.......we kept changing the Doctors...but of no use.My situation got worst and worst.The day i had to write my exam my friend lifted my feet so that i can step inside the car...somehow i reached and tried to write something....but i couldn't...i just cried and cried.....wrote a line or two and just came back telling my situation to the headteacher......
My situation was becoming worse and worse.It became completely impossible for me to lift my arms or legs.I was totally paralysed.Clenching fingers was also so difficult.I had to call someone if i wanted to get up.I was in unbearable pain...even if somebody used to touch me to feel my swelling it used to hurt.I was so shocked by seeing myself in that situation.Lying down whole day and feeling sick ,how difficult is that was realized by me then only.
We kept changing Doctors as none seems to diagnose my condition making us more miserable.One day we(me and my Dad) went to our GP.That was the day when my GP told my dad that if he wants to see me alive,he should take me to PGI-Lucknow(INDIA)immediately.Without wasting time my dad took me to PGI with a hope in his eyes........WE reached the Hospital next day early morning and my journey towards a better health life began from there...........draft 11/07/09 by Anita Delete